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Diagnosis: Premature & a mild case of Cerebral Palsy Birthday: December 28, 2008
Diagnosis: Stage 4 Neuroblastoma Birthday: June 29, 2011
Diagnosis: Triplet born at 29 weeks, Craniosynostosis, Diffuse Infiltrating, Grade 3 Astrocytoma Birthday: October 1, 2010
Diagnosis: Caroli's Disease, FSGS, CF, Pulmonary Stenosis, Chronic Pancreatitis Birthday: February 17, 2006
Diagnosis: Kidney failure & Post-Transplant Lymphoproliferative Disorder Birthday: October 1, 2003
Diagnosis: ALL Acute Lymphoblastic Leukemia B-Cell Birthday: October 10, 2011
Diagnosis: Carnitine Deficiency, ADHD, Sensory Processing Disorder, Hypotrichosis Congenita, Mixed Receptive Expressive Language Disorder, Articulation Delay, Recurrent Otitis Media, Sleep Issues Birthday: July 24, 2010
Diagnosis: Fibrosarcoma Birthday: October 30,2020
Diagnosis: Partial Agenesis of the Corpus Callosum (P-ACC), Epilepsy, Global Developmental Delay, & Non-Verbal Birthday: February 7, 2008
Diagnosis: Acute Lymphoblastic Leukemia Birthday: January 7, 2005
Diagnosis: Pulmonary Valve Stenosis, Supraventricular Tachycardia, Asthma Birthday: February 11, 2010
Diagnosis: Spina Bifida Birthday: January 12, 2011
Diagnosis: Acute Lymphoblastic Leukemia Birthday: November 14, 2002
Diagnosis: Periodic Fever, Aphthous Stomatitis, Pharyngitis, & Adenitis (PFAPA) Birthday: February 27, 2004
Diagnosis: Pre-B Acute Lymphoblastic Leukemia (ALL) Birthday: May 30, 2012
Diagnosis: Premature Birthday: March 23, 2005
Diagnosis: Clear Cell Meningioma & Malignant Brain Tumor Birthday: November 23, 2003
Diagnosis: Craniosynostosis Birthday: April 10, 2007
Diagnosis: Premature Birthday: February 22, 2004
Diagnosis: Asthma and Adenovirus (cured) Birthday: April 16, 2017
Diagnosis: Carnitine Deficiency, Asthma, ADHD, Hearing Loss, Speech Disorder, PICA, Bifid Uvula, & Pectus Carinatum Birthday: May 10, 2009
Diagnosis: ALCAPA, RPA Stenosis, & MV Regurgitation Birthday: November 6, 2013
Diagnosis: ALL Acute Lymphoblastic Leukemia Birthday: July 11, 2009
Diagnosis: Cystic Fibrosis Birthday: November 14, 2004
Diagnosis: ALL Leukemia Birthday: October 30, 2003
Diagnosis: ALL Leukemia Birthday: July 21, 2008
Diagnosis: Congenital Central Hypoventilation Syndrome Birthday: April 22, 2011
Diagnosis: Primum Atrial Septal Defect, Mitral Valve Regurgitation, Tricuspid Valve Regurgitation, Congenital Cleft Leaflet of Mitral Valve, Coarctation of the Aorta, Autism Birthday: April 14, 2016
Diagnosis: Chronic Recurrent Multifocal Osteomyelitis, Orthostatic Dizziness, chronic nosebleeds, migraines Birthday: October 15, 2007
Diagnosis: Autism, Epilepsy, Carnitine Deficiency, ADHD, Sensory Processing Disorder, Sleep Disorder, PTSD, Speech Disorder, Urinary Incontinence, Encopresis & Abdominal Pain Birthday: July 18, 2007
Diagnosis: Dilated Cardiomyopathy & heart transplant in April 2019 Birthday: July 3, 2018
Diagnosis: Hypoxic Ischemic Encephalopathy of Newborn Birthday: October 6, 2014
Diagnosis: Tetralogy of Fallot/Pulmonary Atresia with Ventricular Septal Defect (VSD) Birthday: May 11, 2018
Diagnosis: Non-Hodgkin's Burkitt's Lymphoma Birthday: April 22, 2010
Diagnosis: 2nd degree burns to 15% of his body from a camp fire accident (face, right ear, right arm, chest and stomach were affected) Birthday: April 15, 2005
Diagnosis: Aortopulmonary (AP) Window Repair & Hypoplasia of the Aorta Birthday: September 24, 2010
Diagnosis: Premature Birthday: January 31, 2005
Diagnosis: High Risk ALL, Spinal Cord & Brain Birthday: November 5, 2005
Diagnosis: Intractable Epilepsy & Doose Syndrome Birthday: December 20, 2007
Diagnosis: Conducting Central Lymphatic Anomaly (CCLA), affecting his heart, lungs, left arm and hand, waist down. Severe autism and non-verbal. Birthday: January 23, 2017
Diagnosis: Hematoma on Spinal Cord Birthday: March 10, 2006
Diagnosis: chronic kidney disease (CKD) stage 1 and renal hypertension Birthday: August 1, 2015
Diagnosis: Premature, Necrotizing Enterocolitis & Short Gut Birthday: November 22, 2013
Diagnosis: Cystic Fibrosis Birthday: September 14, 2011
Diagnosis: Neuroblastoma Birthday: September 4, 2008
Diagnosis: Bronchomalacia & Erb’s Palsy Birthday: December 18, 2005
Diagnosis: Vision loss, PTSD, Anxiety, Chronic Migraines, Dyslexia & Learning Disability Birthday: June 30, 2008
Diagnosis: Idiopathic Thrombocytopenic Purpura (ITP) Birthday: January 11, 2007
Diagnosis: Transposition of the Great Arteries Birthday: April 22, 2016
Diagnosis: Premature Birthday: September 22, 2017
Birthday: February 21, 2017 Diagnosis: Born at 32 weeks & 4 days with a Bilateral Cleft Lip Palate, Tethered Cord, Scoliosis, Coloboma of his left eye, and only has one ear.
Birthday: February 7, 2007 Diagnosis: Myelodysplastic Syndrome & Down Syndrome
Birthday: September 20, 2007 Diagnosis: Hypoplastic Left Heart Syndrome
Birthday: September 5, 2005 Diagnosis: Mitochondrial Disease
Birthday: July 18, 2016 Diagnosis: Axenfeld Rieger Syndrome PITX2 & Macrocephaly
Birthday: September 3, 2004 Diagnosis: Ganglioglioma tumor and autism
Birthday: February 12, 2014 Diagnosis: Amputation to left big toe, life threatening infection and trauma to legs and intestines
THE KIDDOS THAT ARE FOREVER DANCING IN OUR HEARTS
August 13, 1999 - April 28, 2015 Diagnosis: Stage 3 T-cell Lymphoblastic Lymphoma
November 9, 2006-April 28, 2014 Diagnosis: Neuroblastoma
October 17, 1999-March 7, 2016 Diagnosis: Acute Lymphocytic Leukemia
November 27, 2007-June 17, 2013 Diagnosis: Hepatoblastoma/ Transitional Liver Cell Tumor
July 5, 2019-July 17, 2019 Diagnosis: Complications due to Enterovirus at 12 days old
December 7, 2019 - November 2, 2021 Diagnosis: Initially Infantile ALL, switched to AML after CAR-T transplant
June 22, 2002-August 11, 2014 Diagnosis: T-Cell ALL Acute Leukemia
July 11, 2001-February 16, 2012 Diagnosis: DIPG (Diffuse Intrinsic Pontine Glioma) or Pediatric Brainstem Cancer
October 2, 2003-September 2, 2011 Diagnosis: Diffuse Intrinsic Pontine Glioma (DIPG)
March 21, 2012 - January 30, 2017 Diagnosis: Acute Lymphoblastic Leukemia
Birthday: December 3, 2012 Diagnosis: Leukodystrophy: Vanishing White Matter Disease (VWM)